SOE Syllabus Template
Council for Exceptional Children
www.cec.sped.org.
Family Support Network
http://fsnnc.med.unc.edu/
Care Pages http://www.carepages.com/home.jsp
Brave Kids http://bravekids.org/
UNC links http://www.unchealthcare.org/site/NCChildrensHospital/parentinfo/suggestedlinks
Prescription Drug Patient Assistance Programs- Info for low-income families
http://www.nami.org/Template.cfm?section=about_medications&Template=/ContentManagement/contentDisplay.cfm&ContentID=19169
*Education/School Resources from Mission Hospitals
http://missionhospitals.org/childrens-handouts.htm
*Books Aloud
http://www.booksaloud.org/home.htm
Burns
Cool the Burn: a site for children touched by a burn
www.cooltheburn.com
BurnSurvivor.org is about support, education, prevention and motivation... the
non-medical and more emotional side of burn care. BurnSurvivor.org will arm
burn survivors with tools necessary to be successful in life. Excellent guide
to burn camps.
www.BurnSurvivor.org
The Great Sparky the Fire Dog Fire prevention and safety for kids and teens.
www.sparky.org
Phoenix Society for Burn Survivors, Inc. Support group for burn survivors.
www.phoenix-society.org
Burn Institute
Dedicated to reducing burn injuries and deaths. Includes teaching materials.
www.burninstitute.org
*Shriners Hospitals--Reentry programs of the Burn Shriners Hospitals.
www.shrinershq.org/hospitals/burninst/reentry.html
Cancer and Blood Disorders
National Children's Cancer Society
www.children-cancer.com
Candlelighters Childhood Cancer Foundation
Information on aspects of childhood cancer for children, parents,
survivors, bereaved families, health professionals, and educators.
www.candlelighters.org
Wigs for Kids
http://www.wigsforkids.org/
Childhood Brain Tumor Foundation
http://www.childhoodbraintumor.org/
Leukemia-Lymphoma Society
http://www.leukemia-lymphoma.org/hm_lls
American Society of Pediatric Hemotology/Oncology's Links Page
http://www.aspho.org/i4a/pages/index.cfm?pageid=132
Pediatric Cancer and Blood Disorders Links on information and camps
from Childrens Healthcare of Atlanta
http://www.choa.org/default.aspx?id=4304
Hemophilia
http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/hematology/bledhemo.html
*Hemophilia and School: Developing an Individualized Education Plan
www.hemophilia.org/resources/nurses/ihp.ppt
Sickle Cell Disease
http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/hematology/sicklcel.html
Cystic Fibrosis
*Scholarships http://www.cfscholarships.com/
CF Foundation
http://www.cff.org/home/
CFF Carolinas Chapter http://www.cff.org/Chapters/carolinas/
Cystic Fibrosis- A Guide for patient and family by David Orenstein
Kidney Disease
National Kidney & Urologic Diseases Information Clearinghouse
Includes information about childhood kidney disease
kidney.niddk.nih.gov
National Kidney Foundation
www.kidney.org/patients
YakTalk: Young Adult Kidney Talk
An e-mail group
home.nycap.rr.com/jazzer/yaktalk
Diabetes
What is Diabetes
http://www.childrensdiabetesfdn.org/educ/whatis.html
*Sending your diabetic child to school
http://www.childrensdiabetesfdn.org/educ/sclhealth.html
Children with diabetes
http://www.childrenwithdiabetes.com/kids/
Epilepsy
A Parent's Guide to Epilepsy
http://www.epilepsy.org.uk/info/parents.html
Epilepsy and Education
http://www.epilepsy.org.uk/info/education.html
Epilepsy Foundation
http://www.epilepsyfoundation.org/
Intro to Epilepsy
http://www.epilepsyfoundation.org/answerplace/About-Epilepsy.cfm
*Epilepsy and Education
http://www.epilepsyfoundation.org/answerplace/Social/education/
Immune Deficiencies
Links from UVA health system on Immune Deficiencies
http://www.healthsystem.virginia.edu/uvahealth/peds_allergy/oidhub.cfm
Severe Combined Immunodeficiency
http://www.scid.net/
http://www.scid.net/scidpid.htm More
information on Immunology
Asthma
American Academy of Allergy Asthma and Immunology
Tips in English and Spanish
http://www.aaaai.org/patients/publicedmat/tips/#English
http://www.aaaai.org/espanol/tips/
Learn about Asthma and what to do about it from the Asthma Coalition
of New Jersey
http://www.pacnj.org/docs/PACNJ%20Final%20Asthma%20Brochure.pdf
Asthma and Allergy Foundation
http://www.aafa.org/
Asthma and Schools
Healthy Schools Network - Environmental health practices for schools
http://www.healthyschools.org/guides_materials.html
Useful Asthma Management Tools for School Nurses
http://www.schoolasthmaallergy.com/2002-2003/sections/toolkit/tools_nurses/index.html
Environmental Protection Agency-Managing Asthma in the School Environment
with information about the EPA program - "IAQ Tools for Schools")
http://www.epa.gov/iaq/schools/index.html
Asthma&Schools-Linking teachers, administrators, & others with asthma
resources
Http://asthmaandschools.org
National Institute of Health, National Heart, Lung, Blood Institute:
Asthma Awareness
http://www.nhlbi.nih.gov/health/prof/lung/asthma/school/index.htm
H.R. 2023 - "Asthmatic School-children's Treatment and Health
Management Act of 2004"
http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_cong_bills&docid=f:h2023enr.txt.pdf
(An Act to give preference regarding States that require schools to
allow students to self administer medication to treat the student's
asthma or anaphylaxis and for other purposes)
Disabilities
Exceptional Children's Assistance Center
A North Carolina-based information center for parents of children with
disabilities
Includes links for ADD, mental retardation, mental health, hearing
impaired, learning disabilities, Down Syndrome, NC and national
agencies
www.ecac-parentcenter.org
TelAbility: Enhancing the Lives of Children with Disabilities
Community oriented, interdisciplinary program that uses
telecommunications to improve the lives of children with disabilities.
www.telability.org
Family Support Network of North Carolina
Summer camp listings, links to NC resources, disability resources
fsnnc.med.unc.edu
Don Johnston-Learning Intervention Resources
For struggling students and students with disabilities
Includes an interactive discussion forum
www.donjohnston.com
Traumatic Brain Injury
Brain Injury Association of NC
(www.bianc.net)
Lash Publishing - great resource for TBI
(www.lapublishing.com)
Pediatric Traumatic Brain Injury: A review of pertinent
issues from
April 2005 Pediatric Rehabilitaion Journal
http://www.bianc.net/docs/pedrehab_savage_lash.pdf
For Children & Teens
Listen to Our Stories- Words Pictures and Songs by Young People With
Disabilities
http://www.listentoourstories.com/
Bandaides and Blackboards
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Kids Health http://www.kidshealth.org/kid/
YakTalk: Young Adult Kidney Talk
An e-mail group
home.nycap.rr.com/jazzer/yaktalk
Cool the Burn: a site for children touched by a burn
www.cooltheburn.com
Espanol
Kids Health En Espanol http://www.kidshealth.org/kid/en_espanol/index.html
Brave Kids En Espanol
http://w4.systranlinks.com/trans?lp=en_es&url=http%3A%2F%2Fbravekids%2Eorg%2FDefault%2Easp%3F
American Academy of Allergy Asthma and Immunology
Tips in English and Spanish
http://www.aaaai.org/patients/publicedmat/tips/#English
http://www.aaaai.org/espanol/tips/
School
Asthma and Schools
Healthy Schools Network - Environmental health practices for schools
http://www.healthyschools.org/guides_materials.html
Useful Asthma Management Tools for School Nurses
http://www.schoolasthmaallergy.com/2002-2003/sections/toolkit/tools_nurses/index.html
Environmental Protection Agency-Managing Asthma in the School Environment
with information about the EPA program - "IAQ Tools for Schools")
http://www.epa.gov/iaq/schools/index.html
Asthma&Schools-Linking teachers, administrators, & others with asthma
resources
Http://asthmaandschools.org
National Institute of Health, National Heart, Lung, Blood Institute:
Asthma Awareness
http://www.nhlbi.nih.gov/health/prof/lung/asthma/school/index.htm
H.R. 2023 - "Asthmatic School-children's Treatment and Health
Management Act of 2004"
http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=108_cong_bills&docid=f:h2023enr.txt.pdf
(An Act to give preference regarding States that require schools to
allow students to self administer medication to treat the student's
asthma or anaphylaxis and for other purposes)
*Education/School Resources from Mission Hospitals
http://missionhospitals.org/childrens-handouts.htm
*Books Aloud
http://www.booksaloud.org/home.htm
